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It has been a busy – but fun-filled – month of May! :)

The first thing I want to do is apologize for not writing sooner. In the last few weeks I have found myself sitting down numerous times to begin an entry only to get side tracked with something else.

While I found it difficult to return to work after being off all winter, Peter recently returned after being on parental leave for the past EIGHT months and it has been a huge adjustment for ALL of us.

Although it has been a very eventful spring so far, it’s been a ‘quiet’ one at the same time. We’ve been busy with work, daycare visits, planning Ethan’s first birthday, swimming lessons, birthday parties, social events, fundraising events, baking shortbread cookies for the annual hemophilia walk (52 dozen to be exact), routine bloodwork, and just living life as normal. BUT, it’s been quite in the way of bumps, bruises, and bleeds.

Last week has been the first bump of any sort in a while… Hopefully it stays that way (knock on wood). Ethan and I were looking out the living room window early last Monday morning just watching the cars go by when he slipped and hit his face off the window ledge. It instantly turned purple and he had a big bruise right across his cheek. It is only now starting to clear up. Thankfully it didn’t get any worse and didn’t require any extra treatment.

Since returning back to work a little over a month ago we’ve got into a great routine of infusing Ethan before he heads off to daycare. It just requires a little more work than normal on our behalf. Instead of getting up at the usual 6:40am, I now wake at 6:00am to get myself ready and prepare Ethan’s supplies for the morning. It has been working really well. Everyone is up, washed, dressed, fed, and out the door by 8:00am.

Ethan is really settling into the routine of his at-home infusions and usually doesn’t even wiggle or squirm! He pretty much just lays there and babbles while we do all the work… Although some days require a lot of singing, ha ha. But, he IS making great progress.

After Ethan had some blood work done about six or seven weeks ago, his dosage of Advate was doubled on a regular basis because his levels weren’t as high as they had anticipated after his treatment.

We returned to the Janeway this past Wednesday to have some more blood work done to check his pre and post levels. Hopefully his levels have increased since he now receives a higher dose of Advate.

This past weekend was a busy one – And our FIRST weekend away from Ethan, I might add.

Peter and I were invited (by the NL Hemophilia Chapter) to attend the Canadian Hemophilia Society’s “2015 Rendez-Vous” in Halifax for the weekend. The conference explored state-of-the-art advances in treatment and research benefiting people with bleeding disorders such as hemophilia. Peter and I had the opportunity to meet with other parents, patients, medical professionals, and board members to hear about their experiences with hemophilia. It was a great experience and a very enjoyable weekend to say the least.

While we really missed Ethan and wanted to take him with us, we knew he was fine at home in the care of Nana, Poppy, Grammy, and Poppa.

It was just like shift work for the grandparents, ha ha. Nana and Poppy were on babysitting duty Friday night and Saturday, while Grammy and Poppa started their shift Saturday evening and stayed with him until we returned home today. They all had a great weekend… But I am pretty sure it’s safe to say they will all be in bed early tonight!

Aside from being really busy, things have been going wonderful – the weather is finally starting to warm up a little and Ethan and I have been enjoying our evenings outside playing and taking Ovie for walks.

Ethan is really settling in to daycare and enjoys seeing his little friends every morning. The daycare workers are wonderful too, so that certainly helps! He doesn’t even cry when we drop him off now – a BIG breakthrough from his first few weeks.

We are all really looking forward to summer break, though! It will be nice to have some time away from school, work, and daycare. We plan on spending lots of time outside playing, going for lots of bike rides and walks, and attending LOTS of swimming lessons. While Ethan has participated in weekly lessons at the Carbonear Swimming Pool for the last 10 or 12 weeks, tomorrow he will begin sessions at the Bay Robert’s Swimming Pool as well! Now instead of just swimming once a week, he will swim FIVE times a week… Monday to Thursday in Bay Roberts and Saturday in Carbonear. Oh boy, it’s going to be a busy summer but we are ready for it!

Before I head off to clean up from the weekend, I want to remind everyone about the Pfizer “Take a Helpful Break” contest we entered Ethan in. Voting ends tomorrow (Monday, June 1st) at 11:59pm. In case you aren’t aware, we had to provide a photo or video of Ethan taking a ‘helpful break’ for the entry. You can access the link to the contest on our Facebook group or in my previous blog post. Since we have been heavily involved in volunteer work and fundraising since Ethan was born, I compiled a video of photos from different fundraising events Ethan has participated in (with myself and Peter). If Ethan wins, he will receive a $3000 prize for a personal improvement project of his choice as well as $5000 for the Newfoundland & Labrador Hemophilia Society. Please keep voting – and sharing – and wish us luck. The winner will be announced on Tuesday, June 2nd. Very exciting!

Anyway, I am off. Hopefully I will get a chance to write again real soon.

Take care and thanks for reading,

Kerilynn

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Ethan’s Entry in the “Take a Helpful Break” Contest by Pfizer

We recently entered Ethan in the “Take a Helpful Break” Contest by Pfizer.

Here is a link to Ethan’s contest entry: http://bit.ly/1dfu3Pw

PLEASE SHARE! Please click the link below and take a minute to vote for Ethan’s video! You can vote EVERY DAY (with one entry per day) until June 1st. If Ethan wins, he will receive a $3000 prize as well as $5000 for the Newfoundland & Labrador Hemophilia Society.

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“No act of kindness, no matter how small, is ever wasted.” – Aesop

April 17 was World Hemophilia Day and the Canadian Hemophilia Society decided to host a contest: “Take a Helpful Break” from Pfizer. As an entry for the contest, I created a video to demonstrate what a helpful break means to Ethan.

“My name is Ethan Mercer and I have severe Hemophilia A. I was diagnosed with Hemophilia when I was born. Now I am ONE year old and I live a very healthy, active, ‘normal’ life. I had surgery to have a port-a-cath inserted when I was ten months old so my Mommy and Daddy could give me treatment from home. When I am not busy playing with Mommy, Daddy, and my puppy Ovie, I love to play with my friends, show lots of love and support for others, and help fundraise for different charities and organizations. So many people helped me when I was sick; now I love to do things to return the favor and express my sincere thanks and appreciation!”

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Annual Hemophilia Walk

Sorry for not writing in a while. I will have a new entry soon, I promise. It’s been an eventful and busy spring so far – but thankfully NO bleeds, yay!

Anyway, I wanted to post to let you know that on Saturday, June 13th Ethan (along with myself and Peter) will be participating in the Annual Hemophilia Walk.

We have already sold 30+ dozen shortbread cookies (with 20 people on the waitlist), donating 100% of the proceeds to the Newfoundland Hemophilia Society.

If you would like to sponsor Ethan for the walk, please take a minute to do so…

Here is a little message from Ethan: “On Saturday, June 13th I will be participating in the Annual Hemophilia Walk with my Mommy and Daddy. Please consider making a donation to help support the Newfoundland and Labrador Hemophilia Society. It’s a really great cause and any donation helps. You can make a donation in person, by following the link below, or emailing it to my Mommy. Thanks in advance!”
Ethan’s “Annual Hemophilia Walk” GoFundMe Page: http://www.gofundme.com/upmq8g8

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