The last few weeks have been hectic.
After spending the entire summer home with Ethan and enjoying many of those days doing nothing other than playing with dump trucks and backhoes, we are back to reality.
Back to the reality of 6:30am wake up calls.
Back to the reality of working Monday to Friday.
Back to the reality of dropping Ethan off and picking him up at day care EVERY. SINGLE. DAY.
And, back to the reality of trying to squeeze in as much play time and snuggles as we can between 3:30pm and 8:00pm, ALL while juggling routine things like factor days, cooking meals, cleaning the house, and bath time.
While I really enjoyed having two full months home with Ethan, I have to admit there is something nice about having a routine. I feel like a busy day at work makes me appreciate time spent with him during the evening that much more.
I love leaving work and going to day care to see his excited little face when he notices me peering in through the door at him.
I love when he excitedly runs over and shouts “HI!” as soon as he sees me!
If I am having a ‘not-so-great’ day, he ALWAYS makes it better.
Ethan’s hemophilia has been quite agreeable lately, despite his daredevil ways!
While he loves to walk right off the edge of the couch, climb on top of the kitchen table, stand on top of the biggest truck he has, and attempt to go down the slide while standing, there have been absolutely no bleeding episodes or extra doses of factor… Knock on wood!
He has had some extra bumps and bruises, and even a few minor cuts and scrapes – but nothing out of the ordinary. Nothing that would cause him to stand out from any other 17-month-old. Pheww!
He’s a typical toddler who loves to explore and test the limits.
People always look at me and Peter and say, “Oh my goodness, your nerves must be gone!” or “You must be some nervous with him!”
Our response is usually, “No, not really.”
Peter and I often say we don’t think we are any more cautious with Ethan than we would be with a non-hemophiliac child. While it took us some time to get a feel for things, we usually have a good sense of what Ethan’s limits are and make good judgment as to what is safe and unsafe for him. We know that if he falls and cuts himself it isn’t the end of the world. And if he bumps his chin, knee, or elbow on something while playing, it’s nothing an ice pack and extra dose of factor won’t fix if need be.
While others may look at our lives and feel differently, Ethan is normal to us.
Other than the factor he receives three times a week, we have quickly learned that he really is no different than any other toddler.
Yes, it’s ok if he falls and cuts his knees or scrapes his hands.
Yes, it’s ok for him go down the slide by himself.
Yes, it’s ok for him to go on the bouncy castle.
Yes, it’s ok for him to play with the big kids at the playground.
Yes, it IS ok, and he WILL BE ok.
We recently bought Ethan his first pair of hockey skates. And, we have full intentions of taking him to the stadium from time to time to see if he may be interested in learning to skate.
While you may think we are crazy, we have decided this will be a part of our life. Ultimately, it was our decision. We know Ethan’s limits and we know not to push him. If it’s something he enjoys, we will let him pursue it – while being completely safe about it of course. We will take precautions, and down the road if it is something he learns to love it may eventually require extra factor before stepping onto the ice. But to us, that is a part of Ethan’s ‘normal’ and ensuring he doesn’t feel left out.
In the end we want to ensure Ethan doesn’t feel restricted or limited because of his hemophilia.
At this rate, we know that he won’t.